So much. Too much.
I'll try
to condense our stories. Are you with me!?
Hospitals resemble mass transit stations at rush hour more than a medical care facilities. I could not have kept my head above water without the eager guidance of Butterfly Home partners who live in Shanghai -- Camille, Paulina and Yiwen. They made everything happen. Camille and her husband Nick, a Taiwanese couple, opened their lovely home to us for an entire week. They arranged our transportation, cooked our meals, helped with the boys, gave me an old cell phone when mine got swiped.
(true story - my wallet containing a small amount of cash and phone got nabbed, which is why I have no camera photos.)
Those volunteers saved us. They did everything.
Thank you,
thank you.
Now, on to the results of this investigation -- recall that our Shanghai-objective was to answer these questions: Why is Jonathon not eating well and regurgitating, and what can be done?
Answers.
- Not due to an functional or structural problem with his esophagus. That's all normal.
- Nor due to neurological damage. His brain is beautiful. The recovery demonstrated in Jonathon's MRI images left our expert pediatric neurologist astonished.
- Allergy to milk and eggs. (and we had been feeding him tons! poor kid!)
- Jonathon missed a critical period of eating development at age 8 -12 months during which he was ill and unable learn techniques and develop muscle skills for normal eating/swallowing. It's hard to learn now. But he's going to get it because...
Jonathon had an fun assessment with an American speech-language pathologist at
Olivia's Place. She taught me several techniques that will help Jonathon. The great news is our therapy relationship will continue. Drew & I need support! Eating is going markedly better already, and now without milk and eggs, vomiting has ceased entirely.
Yes!
Relief.
for Jonathon and for us.
...
Remember I was pouting and feeling homesick for Minnesota and thought Shanghai was the last place I wanted to be?
Shanghai, with all it's Western delights, did not even feel like China.
Let me qualify that. Our hosts' affluent neighborhood didn't feel like the China I know -- with a Western grocery store, sports bar & grill, Cold Stone Creamery, a big clean house with butter in the refrigerator and a minivan to drive around in.
Michael and I blissfully ate our way through three boxes of Cheerios.
Somehow, sharing classic American breakfast with my son, that yellow cereal box smiling at us...
not one but
two visits to Cold Stone...
a bathroom vanity and toilet that looked just like the ones I grew up with...
It was comforting and lessened my homesickness.
We rested and played.
There were two days in which we had mostly nothing to do. I couldn't call anybody because my phone had been stolen. There were no errands, no cleaning, no cooking, nothing. I played with my kids.
...
Sunday afternoon we joined
Shanghai Community Fellowship.
Miraculously, Michael was content to stay in the preschool class without me (Jon is always willing).
Just me... when you're a mom of three littles and you finally get alone, you feel strangely off-balance, like missing an extremity, or like you've forgotten something, and unfettered...
Just me... I entered into the big group, a congregation singing in one accord. My heart swelled up with joy. Moved by the unified expression of adoration. Moved by the presence of the King.
It occurred to me that is the first time in 2? 3? years that I've been in a large gathering in my heart language, English. The Spirit poured water on my dry and shriveled little soul. It was refreshment that I've so much been in need of, and I realize that God had a multiple purposes for our trip to Shanghai.
Yep, he loves us.
...
Been home for four days now and it's so good to be back!
!!!Drew!!!
counting the graces
thank you Father for
all of the above
and I'd specifically like to mention that while the thief did get my wallet and phone, he missed our passports and an enormous sum of cash for medical expenses which was in an envelope right next to my wallet